Related ArticlesA Multifactorial Approach to Sleep and Its Association with Health-Related Quality of Life in a Multiethnic Asian Working Population: A Cross-Sectional Analysis. Int J Environ Res Public Health. 2019 10 28;16(21): Authors: Dunleavy G, Tonon AC, Chua AP, Zhang Y, Cheung KL, Thach TQ, Rykov Y, Soh CK, Christopoulos G, de Vries H, Car J Abstract This study aims to explore if objectively and subjectively measured sleep parameters are associated...
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Related ArticlesA Detoxification Intervention for Gulf War Illness: A Pilot Randomized Controlled Trial. Int J Environ Res Public Health. 2019 10 28;16(21): Authors: Kerr K, Morse G, Graves D, Zuo F, Lipowicz A, Carpenter DO Abstract Approximately 30% of the 700,000 US veterans of the 1990-1991 Persian Gulf War developed multiple persistent symptoms called Gulf War illness. While the etiology is uncertain, several toxic exposures including pesticides...
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Related ArticlesDevelopment and clinimetric properties of the Dutch Breast Edema Questionnaire (BrEQ-Dutch version) to diagnose the presence of breast edema in breast cancer patients. Qual Life Res. 2020 Feb;29(2):569-578 Authors: Verbelen H, De Vrieze T, Van Soom T, Meirte J, Van Goethem M, Hufkens G, Tjalma W, Gebruers N Abstract PURPOSE: To develop a diagnostic tool, the Breast Edema Questionnaire (BrEQ) and to determine its clinimetric properties....
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Related ArticlesDevelopment of a tool to assess oral health-related quality of life in patients hospitalised in critical care. Qual Life Res. 2020 Feb;29(2):559-568 Authors: Moreno Sancho F, Tsakos G, Brealey D, Boniface D, Needleman I Abstract AIMS AND OBJECTIVES: Oral health deteriorates following hospitalisation in critical care units (CCU) but there are no validated measures to assess effects on oral health-related quality of life (OHQoL). The...
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Related ArticlesPrivate religion/spirituality, self-rated health, and mental health among US South Asians. Qual Life Res. 2020 Feb;29(2):495-504 Authors: Kent BV, Stroope S, Kanaya AM, Zhang Y, Kandula NR, Shields AE Abstract PURPOSE: Connections between private religion/spirituality and health have not been assessed among US South Asians. The aim of this study was to examine the relationship between private religion/spirituality and self-rated and...
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Related ArticlesPROMIS Global Health item nonresponse: is it better to impute missing item responses before computing T-scores? Qual Life Res. 2020 Feb;29(2):537-546 Authors: Thompson NR, Katzan IL, Honomichl RD, Lapin BR Abstract PURPOSE: Item response theory (IRT) scoring provides T-scores for physical and mental health subscales on the Patient-Reported Outcomes Measurement Information System Global Health questionnaire (PROMIS-GH) even when relevant...
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Related ArticlesTest-retest reliability of ICECAP-A in the adult Danish population. Qual Life Res. 2020 Feb;29(2):547-557 Authors: Holst-Kristensen AW, Fonager K, Pedersen KM Abstract PURPOSE: To investigate the test-retest reliability of Investigating Choice Experiments Capability measure for Adults (ICECAP-A) in the adult Danish population. METHODS: The original English ICECAP-A was translated into Danish by forward-backwards translation...
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Related ArticlesHealth-related quality of life among Syrian refugees resettled in Sweden. Qual Life Res. 2020 Feb;29(2):505-514 Authors: Gottvall M, Sjölund S, Arwidson C, Saboonchi F Abstract PURPOSE: The main purpose of this study was to assess health-related quality of life (HRQoL) among Syrian refugees resettled in Sweden. Further, we wanted to investigate whether sex, age, education, area of residence, cohabitation and social support were associated...
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Related ArticlesIs Dyssynergic Defecation an Unrecognized Cause of Chronic Constipation in Patients Using Opioids? Am J Gastroenterol. 2019 11;114(11):1772-1777 Authors: Nojkov B, Baker J, Menees S, Watts L, Collins K, Armstrong M, Thibault M, Harer K, Lee A, Eswaran S, Saad R, Chey WD Abstract OBJECTIVES: The impact of opioids on anorectal function is poorly understood but potentially relevant to the pathogenesis of opioid-induced constipation (OIC)....
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Related ArticlesLongitudinal 16-year study of dominant intermediate CMT type C neuropathy. Muscle Nerve. 2020 01;61(1):111-115 Authors: Pan Y, Kafaie J, Thomas FP Abstract BACKGROUND: Dominant-intermediate Charcot-Marie-Tooth neuropathy subtype C (DI-CMTC) is associated with mutations in the YARS gene. The aim of this study is to investigate the long-term natural history of the disease. METHODS: In a 5-generation DI-CMTC family, we compared...
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Related ArticlesSeverity and depression can impact quality of life in patients with myasthenia gravis. Muscle Nerve. 2020 01;61(1):69-73 Authors: Alanazy MH, Binabbad RS, Alromaih NI, Almansour RA, Alanazi SN, Alhamdi MF, Alazwary N, Muayqil T Abstract BACKGROUND: The revised 15-item Myasthenia Gravis (MG) Quality of Life Questionnaire (MGQoL15R) is a validated scale of quality of life in patients with MG. We aimed to study the factors causing the variability...
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Related ArticlesPatients with Chronic Musculoskeletal Pain of 3-6-Month Duration Already Have Low Levels of Health-Related Quality of Life and Physical Activity. Curr Pain Headache Rep. 2019 Aug 27;23(11):81 Authors: Majlesi J Abstract PURPOSE OF REVIEW: To determine the level of physical activity and health-related quality of life in patients with chronic musculoskeletal pain of 3-6-month duration who have not been diagnosed or treated before. ...
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Related ArticlesReview of the Intercollegiate Surgical Curriculum Programme for oral and maxillofacial surgery aesthetics: are we underselling ourselves? Br J Oral Maxillofac Surg. 2019 11;57(9):918-922 Authors: Awal DH, Walker TWM, Mills C Abstract Aesthetic facial surgery is considered to be within the remit of the maxillofacial surgeon but this is not reflected currently in the trainees' curriculum. In contrast, the plastic surgery curriculum demands...
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Related ArticlesA Capabilities Approach to Prenatal Screening for Fetal Abnormalities. Health Care Anal. 2019 Dec;27(4):309-321 Authors: Stapleton G, Dondorp W, Schröder-Bäck P, de Wert G Abstract International guidelines recommend that prenatal screening for fetal abnormalities should only be offered within a non-directive framework aimed at enabling women in making meaningful reproductive choices. Whilst this position is widely endorsed, developments...
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Related ArticlesAn Analysis of Cost-Effectiveness of Stents Used in the Treatment of Coronary Artery Disease Balkan Med J. 2019 08 22;36(5):276-282 Authors: Işıkçelik F, Ağırbaş İ, Tulunay Kaya C Abstract Background: There is only limited information about the cost-effectiveness of drug-eluting stents compared with bare-metal stents in Turkey. Aims: To evaluate bare-metal and drug-eluting stents used in the treatment of coronary artery disease...
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Related ArticlesContent analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention: insights gained from the ACTION trial. Support Care Cancer. 2020 Mar;28(3):1513-1522 Authors: Zwakman M, van Delden JJM, Caswell G, Deliens L, Ingravallo F, Jabbarian LJ, Johnsen AT, Korfage IJ, Mimić A, Arnfeldt CM, Preston NJ, Kars MC, ACTION consortium Abstract PURPOSE: Writing an Advance Directive (AD)...
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Related ArticlesCommentary on: How Plastic Surgeons Value Professionalism: Using Q Methodology to Explore the Prioritization of Professionalism. Aesthet Surg J. 2019 11 13;39(12):1423-1426 Authors: Fiala TG PMID: 31254377 [PubMed - indexed for MEDLINE]
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Related ArticlesValidation of a Photonumeric Assessment Scale for Grading the Slope of the Asian Forehead. Dermatol Surg. 2019 08;45 Suppl 1:S38-S45 Authors: Yu Chao YY, Chhabra C, Corduff N, Fabi SG, Hornfeldt CS, Kerscher M, Lam S, Pavicic T, Peng PHL, Pooth R, Rzany B, Seo K, Suwanchinda A, Tseng FW, Geister TL Abstract BACKGROUND: As the number of aesthetic treatments has grown, so have the number of photonumeric assessment scales used to compare...
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Related ArticlesA Validated Assessment Scale for Asian Chin Projection. Dermatol Surg. 2019 08;45 Suppl 1:S30-S37 Authors: Suwanchinda A, Seo K, Geister TL, Yu Chao YY, Chhabra C, Fabi SG, Hornfeldt CS, Kerscher M, Lam S, Pavicic T, Peng PHL, Rzany B, Tseng FW, Pooth R, Corduff N Abstract BACKGROUND: As the number of different aesthetic treatments increase, numerous photonumeric assessment scales have been developed and validated to measure the effectiveness...
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Related ArticlesValidated Assessment Scales for Skin Laxity on the Posterior Thighs, Buttocks, Anterior Thighs, and Knees in Female Patients. Dermatol Surg. 2019 08;45 Suppl 1:S12-S21 Authors: Kaminer MS, Casabona G, Peeters W, Bartsch R, Butterwick K, Yen-Yu Chao Y, Costa J, Eviatar J, Fabi SG, Geister TL, Goldie K, Grice J, Hexsel D, Lorenc P, Lupo M, Pooth R, Sattler G, Waldorf HA, Yutskovskaya Y, Kerscher M Abstract BACKGROUND: The demand for noninvasive...
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Related ArticlesValidated Assessment Scales for Cellulite Dimples on the Buttocks and Thighs in Female Patients. Dermatol Surg. 2019 08;45 Suppl 1:S2-S11 Authors: Hexsel D, Fabi SG, Sattler G, Bartsch R, Butterwick K, Casabona G, Yen-Yu Chao Y, Costa J, Eviatar J, Geister TL, Goldie K, Grice J, Kerscher M, Lorenc P, Lupo M, Peeters W, Pooth R, Waldorf HA, Yutskovskaya Y, Kaminer MS Abstract BACKGROUND: New treatment methods for cellulite require globally...
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Related ArticlesValidated Assessment Scales for the Female Asian Calf. Dermatol Surg. 2019 08;45 Suppl 1:S22-S29 Authors: Seo K, Geister TL, Yu Chao YY, Chhabra C, Corduff N, Fabi SG, Hornfeldt CS, Kerscher M, Lam S, Pavicic T, Peng PHL, Rzany B, Suwanchinda A, Tseng FW, Pooth R Abstract BACKGROUND: Clinical photonumeric scales have been developed and validated to objectively measure the effectiveness of aesthetic treatments in specific anatomical areas;...
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Related ArticlesIntroduction. Dermatol Surg. 2019 08;45 Suppl 1:S1 Authors: Jones DH, Flynn TC, Humphrey S PMID: 31246864 [PubMed - indexed for MEDLINE]
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Related ArticlesExploring the efficacy of a paraprofessional delivered telephonic psychoeducational intervention on emotional well-being in African American breast cancer survivors. Support Care Cancer. 2020 Mar;28(3):1163-1171 Authors: Ashing KT, George M Abstract PURPOSE: African American breast cancer survivors (AABCS) are underserved in medical and psychosocial care despite greater disease burden. We evaluated the effectiveness of a telephonic psycho-educational...
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Related ArticlesCost-effectiveness analysis of three algorithms for diagnosing primary ciliary dyskinesia: a simulation study. Orphanet J Rare Dis. 2019 06 13;14(1):142 Authors: Kouis P, Papatheodorou SI, Middleton N, Giallouros G, Kyriacou K, Cohen JT, Evans JS, Yiallouros PK Abstract BACKGROUND: Primary Ciliary Dyskinesia (PCD) diagnosis relies on a combination of tests which may include (a) nasal Nitric Oxide (nNO), (b) High Speed Video Microscopy...
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Related ArticlesThe impact of sirolimus therapy on lesion size, clinical symptoms, and quality of life of patients with lymphatic anomalies. Orphanet J Rare Dis. 2019 06 13;14(1):141 Authors: Ozeki M, Nozawa A, Yasue S, Endo S, Asada R, Hashimoto H, Fukao T Abstract BACKGROUND: Lymphatic anomalies (LAs) include several disorders in which abnormal lymphatic tissue invades the neck, chest, and various organs. Progressive cases may result in lethal outcomes...
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Related Articles"Be an ambassador for change that you would like to see": a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease. Orphanet J Rare Dis. 2019 06 07;14(1):126 Authors: Ambrosini A, Quinlivan R, Sansone VA, Meijer I, Schrijvers G, Tibben A, Padberg G, de Wit M, Sterrenburg E, Mejat A, Breukel A, Rataj M, Lochmüller H, Willmann R, 235th ENMC workshop study group...
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Related ArticlesUnder-utilisation of reproducible, child appropriate or patient reported outcome measures in childhood uveitis interventional research. Orphanet J Rare Dis. 2019 06 06;14(1):125 Authors: Solebo AL, Barry RJ, Keane PA, Rahi JS, Denniston AK Abstract BACKGROUND: Childhood uveitis is a collection of chronic rare inflammatory eye disorders which result in visual loss in at least one eye of one fifth of affected children. Despite the introduction...
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Related ArticlesNatural History, Quality of Life, and Outcome in Cardiac Transthyretin Amyloidosis. Circulation. 2019 07 02;140(1):16-26 Authors: Lane T, Fontana M, Martinez-Naharro A, Quarta CC, Whelan CJ, Petrie A, Rowczenio DM, Gilbertson JA, Hutt DF, Rezk T, Strehina SG, Caringal-Galima J, Manwani R, Sharpley FA, Wechalekar AD, Lachmann HJ, Mahmood S, Sachchithanantham S, Drage EPS, Jenner HD, McDonald R, Bertolli O, Calleja A, Hawkins PN, Gillmore JD Abstract...
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Related ArticlesPostoperative Patients in Jordan: Pain Prevalence, Characteristics, Beliefs, and Satisfaction. Pain Manag Nurs. 2019 06;20(3):239-244 Authors: Shoqirat N, Mahasneh D, Al-Khawaldeh O, Singh C Abstract BACKGROUND: Unrelieved postoperative pain contributes to soaring medical costs and poor quality of life. Whilst much has been written about postoperative pain prevalence in the literature, few empirical studies have explored pain care in...
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Related ArticlesBilateral Quadriceps Muscle Strength and Pain Correlate With Gait Speed and Gait Endurance Early After Unilateral Total Knee Arthroplasty: A Cross-sectional Study. Am J Phys Med Rehabil. 2019 10;98(10):897-905 Authors: Suh MJ, Kim BR, Kim SR, Han EY, Nam KW, Lee SY, Park YG, Kim WB Abstract OBJECTIVE: The aim of this study was to determine the correlations between objective performance-based physical function, self-reported physical...
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Related ArticlesMaking Patients Fit for Surgery: Introducing a Four Pillar Multimodal Prehabilitation Program in Colorectal Cancer. Am J Phys Med Rehabil. 2019 10;98(10):888-896 Authors: van Rooijen SJ, Molenaar CJL, Schep G, van Lieshout RHMA, Beijer S, Dubbers R, Rademakers N, Papen-Botterhuis NE, van Kempen S, Carli F, Roumen RMH, Slooter GD Abstract BACKGROUND: Considering the relation between preoperative functional capacity and postoperative complications,...
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Related ArticlesObjecting to experiments that compare two unobjectionable policies or treatments. Proc Natl Acad Sci U S A. 2019 05 28;116(22):10723-10728 Authors: Meyer MN, Heck PR, Holtzman GS, Anderson SM, Cai W, Watts DJ, Chabris CF Abstract Randomized experiments have enormous potential to improve human welfare in many domains, including healthcare, education, finance, and public policy. However, such "A/B tests" are often criticized on ethical...
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Related ArticlesRisk, Overdiagnosis and Ethical Justifications. Health Care Anal. 2019 Dec;27(4):231-248 Authors: Rogers WA, Entwistle VA, Carter SM Abstract Many healthcare practices expose people to risks of harmful outcomes. However, the major theories of moral philosophy struggle to assess whether, when and why it is ethically justifiable to expose individuals to risks, as opposed to actually harming them. Sven Ove Hansson has proposed an approach...
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Related ArticlesEnhancing Understanding of Moral Distress: The Measure of Moral Distress for Health Care Professionals. AJOB Empir Bioeth. 2019 Apr-Jun;10(2):113-124 Authors: Epstein EG, Whitehead PB, Prompahakul C, Thacker LR, Hamric AB Abstract BACKGROUND: As ongoing research explores the impact of moral distress on health care professionals (HCPs) and organizations and seeks to develop effective interventions, valid and reliable instruments to measure...
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Related ArticlesSystematic Review: Components of a Comprehensive Geriatric Assessment in Inflammatory Bowel Disease-A Potentially Promising but Often Neglected Risk Stratification. J Crohns Colitis. 2019 Oct 28;13(11):1418-1432 Authors: Asscher VER, Lee-Kong FVY, Kort ED, van Deudekom FJ, Mooijaart SP, Maljaars PWJ Abstract BACKGROUND: The population of older patients with inflammatory bowel disease [IBD] is increasing. Patient age does not fully account...
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Related ArticlesNovel Risk Factors for Posttraumatic Stress Disorder Symptoms in Family Members of Acute Respiratory Distress Syndrome Survivors. Crit Care Med. 2019 07;47(7):934-941 Authors: Lee RY, Engelberg RA, Curtis JR, Hough CL, Kross EK Abstract OBJECTIVES: Family members of ICU survivors report long-term psychologic symptoms of posttraumatic stress disorder. We describe patient- and family-member risk factors for posttraumatic stress disorder...
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Related ArticlesSingle-Patient Expanded Access Requests: IRB Professionals' Experiences and Perspectives. AJOB Empir Bioeth. 2019 Apr-Jun;10(2):88-99 Authors: Chapman CR, Shearston JA, Folkers KM, Redman BK, Caplan A, Bateman-House A Abstract BACKGROUND: U.S. physicians may treat a patient with an investigational drug outside of a clinical trial by using the expanded access (EA) pathway or the recently created federal right to try (RTT) pathway. The...
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"They didn't give up on me": a women's transitions clinic from the perspective of re-entering women.
Related Articles"They didn't give up on me": a women's transitions clinic from the perspective of re-entering women. Addict Sci Clin Pract. 2019 04 02;14(1):12 Authors: Thomas K, Wilson JL, Bedell P, Morse DS Abstract BACKGROUND: Women recently released from incarceration have increased rates of co-occurring substance use, physical health, and mental health disorders. During re-entry, they face challenges navigating needed health services and social...
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